Aaaaahhhhhhh!

Botox, Baclofen, Physiatrist, Orthotist, Tone, Spasticity, Clonus.
I could go on, but what’s the point? Dealing with all of Anne’s doctors and wading through all of her “conditions” is just overwhelming. Advocating for your child’s well-being is stressful for me – especially when I have to navigate the impersonal systems of Atlanta’s larger and prestigious medical practices. Sigh.

When I think about it all, I feel like this:

And my nature is to procrastinate – to just not call this doctor or that doctor… But that only makes me feel like this:

Double sigh. One of the reasons I don’t like dealing with all of Anne’s doctors and “specialists” is that it’s just another reminder that I’m completely out of control. I can’t stop her seizures by myself – or reduce the spasticity in her ankles by myself. I need help. Lots of it! But what I need most of all is peace…

…do not be anxious about anything, but in everything by prayer and supplication with thanksgiving let your requests be made known to God.  And the peace of God, which surpasses all understanding, will guard your hearts and your minds in Christ Jesus (Philippians 4:6-7).

Now excuse me while I go call the doctor…

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7 thoughts on “Aaaaahhhhhhh!

  1. I’m sure that you just feel like screaming sometimes! I would! You’ve got some great responsibilities!
    God bless you and remember that God is in control! Give it all to Him and he’ll give you the strength and patience you need to deal with everything!
    ;-)

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  2. I’m overwhelmed by calling the doctor for ONE condition…I’m sure for you it is overwhelming to the max!!! You are okay to feel that way. Praying for you my friend and wish I could do something physically to help you! I miss you terribly!

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  3. April says:

    Boy, do I understand procrastination! Romans 7:15 For I do not understand my own actions. For I do not do what I want, but I do the very thing I hate.

    Like

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