Time is Different with Disability

This morning was Anne’s first day of summer. She woke at 7:30. I gave her a bath. She loves baths! After dressing, taking her medicine, and eating breakfast, it was almost 9:00 am. Time. It slips away like water. Everything takes longer with disability.

After breakfast, Anne watched the Wiggles while I finished report cards (summer break for teachers is a myth). Then we read a book together.

For the last seven years, my prayers for Anne have been for her to walk and read. God answers prayer. Sometimes he answers quickly and dramatically. Other times, his answer is a slow work – shifting subtlety over time – molding character through patience and perseverance. It is true that Anne can walk and read better than she could seven years ago. This is something to be celebrated. She read the whole Little Bear story, all eleven pages. She read three lines completely independently. I’ve never seen her do that before. She was highly distractable but she had a great attitude as I redirected her attention back to the story. She read with comprehension – often re-reading lines with more emotion to emphasize the meaning.

It took approximately 45 minutes to read the entire story. We were interrupted by a telemarketing call. After I hung up, Anne said, “That was awkward.” We laughed so hard together. The left side of her mouth used to droop when she smiled. Now her smile is almost even – and it’s perfect when she laughs. I love her laugh.

Anne’s almost-even smile

 

We finished the story at 10:30 am. Time. It slips like water. But it’s summer, and there is time to give. Anne is my treasure – a gift to be savored!

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2 thoughts on “Time is Different with Disability

  1. Lu says:

    Yes indeed, EVERYTHING takes longer….and that’s not always a bad thing.

    HOORAY for milestones, big and small. Even those that fall in the miniscule size rang, are worthy of Celebration….and each builds on top of the other (or weaves it’s way to another part) and slowly, steadily, it all adds up….to things like simple, brilliant statements (after being interrupted and making a declaring so clear it bordered on profound) and that brought a bit of “normal”, of laughter to the moment.
    May these ever increase, and may your joy increase alongside as well.

    May this be the Summer of Wows!

    Like

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