Anne’s legs continue to weaken. As her legs grow, her hamstrings tighten, which make it hard for her knees to straighten. Her knee ligaments are stretched so that they no longer give her stability.
We visited the orthopedic surgeon today. This visit has started a snowball of action to help Anne get stronger. The orthopedic surgeon wrote a prescription for KFO’s (Knee-Foot-Orthotics) to give stability to her knees. We will visit the orthotist on Thursday who will make her KFO’s and deliver them to us in about a month. Then, Anne will do another round of the three-week intensive therapy in December to strengthen her quadriceps and hips. In January, her orthopedic surgeon will give Anne botox injections to loosen her hamstring muscles. And finally, I have a call into CHOA’s multi-million dollar robotics lab to start Anne on a 3-month session of intense physical therapy beginning in January. And then we will repeat the whole process this summer.
Our goal: to regain the strength Anne had before her growth spurt and to maintain strength throughout puberty. It will be an uphill climb. We are resolved to fight.
- For an opening in CHOA’s robotics lab that fits my work schedule. Logistically, it will be difficult to fit in two, therapy appointments a week into my full-time teaching job.
- For Anne to not hate wearing her KFO’s. It’s important for Anne to tolerate her KFO so that she can walk more often at school and at home to build strength before her December Intensive Therapy session.
- For discipline and energy for Anne, me and our family.
Anne’s story is a good story – a story of a big God saving a little girl who gives God lots of glory. The story has a good ending. We are just in a hard chapter. We continue to pray Hebrews 12:12-13 over Anne daily. Thank you for fighting along side us!!!
Therefore lift your drooping hands and strengthen your weak knees, and make straight paths for your feet, so that what is lame may not be put out of joint but rather be healed.