Day Rehab…

Wow! Day Rehab is awesome!! All the therapists work together as a team to accomplish Anne’s goals. The support staff is amazing – even working with Anne during the entire lunch hour to keep her food off the floor and in her mouth :-)

The best thing about Day Rehab is that at the end of the day, Anne gets to go HOME!

Anne after her 1st day at Day Rehab

Please pray for wisdom for all of Anne’s primary therapists as they evaluate her over the next two days. Based on their evaluations, they’ll set her goals and determine their course of action.

Our prayer for Anne is that she will be writing, reading and walking by the time she leaves Day Rehab. For that to happen, she needs to make drastic improvements in her focus and attention skills. We’ll see what God does :-)

-kathryn

Wow,

…Anne is home. Anne has really done so well adjusting to home – even with the juxtaposition of having many new experiences for Anne mixed into the familiarity of home:

  • she has learned to sit on her own for 5 minutes or so before falling over.
  • Anne has continued to eat really well, although she still makes an enormous mess :-)
  • she is sleeping better here than at the hospital
  • she seems happy and is only fussy when hungry or constipated
  • we took her to the pool and she enjoyed a short water therapy session

Canon and Kate have been really sweet and are always wanting to assist Anne. Anne pokes their eyes, pulls their hair, and squeezes their noses, but Canon and Kate just love on her. Tonight Kate said to Anne right after Anne pulled Kate’s hair – “I love you, Anne”. Somehow at 4 years old, Kate understands where Anne is in her recovery and is willing to be on the journey with Anne – only God could make that happen.

Pray for Kathryn – it has been hard: While at the hospital, the comparison was the miracle of Anne moving from the stillness and silence of the PICU to Anne’s speech and movement while at inpatient rehab . . . . but at home, we are much more reminded of (and mentally compare her to) Anne’s little person prior to the accident. So we continue to have joy through some tears when remembering the past . . . . but we know God calls us to be in the present with Him . . . . and Anne.

The day rehab program starts on Monday, so our journey continues. . .

Pray that Anne will continue to heal! We have three goals for our stint at day rehab – Reading, Writing, and Walking. Please pray that God heals Anne in these ways.

-eric

Anne’s at HOME!!!!!

I expected to be very emotional when we left the hospital, but I wasn’t. I didn’t cry until we pulled into our driveway and saw balloons, streamers and “Welcome Home Anne” signs. We do have good friends.

Lunch was a comedy of errors. Anne continually dropped her food on the floor. Kate, being the helpful sister, would pick it up. But every time Kate bent over to pick up Anne’s food, Anne would grab her hair. About this time, the Orkin man shows up to spray for bugs. Great.

Anne and Kate are now having a ‘not-so-quiet’ quiet time in their room right now. Both of them need to rest, but I think they’re too excited to do so. Anne seemed very happy to be in her room. It was heart-warming to see.

We’ll start day-rehab on Monday. They’ll spend three days evaluating Anne and then we’ll make a plan based on her current progress, future goals and insurance coverage. Until then, we plan to relax at home and maybe try to go to the pool. Anne loves the water :-)

-kathryn

Discharge date…

We have a discharge date… two weeks from today: 6/17.

We are both excited and nervous. Eric is mostly excited; I am mostly nervous :-)

I’m overwhelmed by the prospect of bringing Anne home as she is now. I want her to be so much further along, but she does have two full weeks. Alot can happen in two weeks!

I think it will be good for the whole family to have Anne home. Canon and Kate are starting to tire of being away from both home and mommy so much. And I think Anne will benefit from being at home.

Anne’s next step after she is discharged is Children’s Day Rehab program. She’ll be in a rehab facility (just across the street from the hospital) five days a week from 9am-3pm. It is a drop-off program that is like school with much structure and group activities. We still don’t know if or how much our insurance covers, so please pray that God will provide either through insurance or other means.

In the interim, we’re praying for God to give Anne a major “boost” (Canon’s word) in her healing, so that caring for her at home will be more joy than burden for the whole family. Specifically that she would be able to:

  1. Sit completely unassisted.
  2. Improve her cognitive/thinking abilities so she can focus for longer periods of time and be able to calm/organize her thoughts so she can verbally express herself more clearly.
  3. Gain greater control over her right hand – so she can feed herself, and maybe even color a little bit :-)

These are my hopes for her before she comes home. She’s already come so far – Two weeks ago she hadn’t spoken her first sentence and her eyes had just started to move. I pray God surprises us in these last two weeks!

Thank you for walking this journey with Anne and our family.

-kathryn