Anne woke up this morning and said, “I don’t want to go to school. School is hard.” For the first time, Anne is required to learn beyond what she knew before the accident. Math is especially challenging, and she gets frustrated easily. Please pray for Anne…
to persevere through the difficulty of learning new material,
for her attention span to increase so it is easier for her to concentrate,
and for her to have self control when she gets frustrated.
Today is Anne’s birthday. Our sweet Anne is eight.
She is coming more alive every day. Her eyes are brighter. Her steps are smoother, and her mind is sharper. We still don’t know God’s ultimate plan for Anne – if she’ll ever be independent… But we can stop and give thanks for what He’s done.
He saved her. And she loves Him. What more could we ask for?
Praise God for Anne’s teacher, para-pro and new therapists! Anne is doing so well in school. She has improved behaviorally and academically. We are so grateful!
Please continue to pray for Anne to have self-control, a sound mind and to hunger and thirst after righteousness.
And lastly, pray that Anne will know God’s presence and trust in His good plan for her.
A few days ago, I was waiting in the front lobby of Nickajack Elementary to pick up Anne from school. Anne’s para-pro wheeled Anne out to meet me, and she was beaming. Anne’s para-pro has a hard job. She is with Anne all day to help her with all of her school tasks… everything from writing to bath-rooming.
“You look so happy today,” I said to her.
“I am! Anne had a great day. She did such good work today. It was a potato chip day!”
Now let me pause to explain… Potato chips are Anne’s absolute favorite food. She will do almost anything for a potato chip. In case you’ve forgotten, here’s a video from earlier this summer to prove it :-)
But back to my conversation with Anne’s para-pro…
She continued, “I am so proud of Anne. And I am so excited!“
Wow. There are several wonderful points I could make from this interchange… The first is that Anne’s para-pro is an answer to prayer. She feels called to work with special needs kids. She’s going back to school late in her life to get a degree in special education. She even works with special needs kids at her church. She’s older and wiser. She observes and is patient. She is a God-send.
But the second thought I walked away with was how foreign her lighthearted spirit was to me. I don’t experience lightheartedness very often since the accident. Our life is characterized by such hard physical care for Anne… most of the time, our lives seem heavy.
So I consider lightheartedness a luxury. And God gave me this luxury today :)
Canon got braces today, and I decided he didn’t need to go to school after such an ordeal. So, I brought Canon and Kate along with me to ride their bikes while I ran with some friends at the River. We veered off the wide, worn path to explore the narrow, rooty trails. Kate and Canon looked like Mountain Bike experts as they navigated the roots and rocks. And I was in heaven. I love trails. Love. them!
After our run, we decided (spontaneously) to pick up Anne early from school and then we all went out for milk-shakes. (A Milk shake for lunch makes tons of sense when your teeth are hurting from new braces.) We were all in the car, drinking our milkshakes and singing along to the radio when it hit me. I feel lighthearted.
I think God-given luxuries are the best. Don’t you?
That’s right. All three kids are going to different schools.
I felt like a pro this morning, getting all three kids up and ready and out the door. Not so last year. Last year I was a mess!
God has been so faithful to provide the perfect school situation for each of my kids.
Canon enters the 4th grade at ACCA, an excellent private christian school. We discovered last spring that only one boy was returning to his class. I began praying for a new family with a 4th grade boy to come to ACCA. God answered! Joshua is the newest member of the 4th grade at ACCA. He is the oldest of three children. Up until now, he was home schooled, but because of a tragedy in his family – concerning his little sister – his mother decided to put him in private school. Does that sound familiar? Aside from the type of tragedy, Joshua and Canon have much in common. God has provided for Canon (and for Joshua).
Anne enters the 1st grade at Nickajack, an excellent public school in our area. I found out last spring that all of Anne’s therapists and para-pro’s would not be returning this year. So we prayed, specifically for Anne’s physical therapist and her new para-pro. I found out this morning that Anne’s new school PT worked with her in the Children’s Day Rehab Program 2 years ago. How amazing is that?? God takes care of Anne.
And Kate. Well, I’m homeschooling Kate. My little girl suffered from not having enough time with mommy last year. So now we have hours of uninterrupted time together. Our first morning has already been profoundly good. I pray that this year lays a foundation of godly character in her life.
So that’s our school year for 12-13. It promises to be a good, good year.
While June was highly structured, July is just the opposite. Please pray for me to establish a structure for Anne, and have the discipline to keep it consistently. Anne thrives under structure, and I struggle with it…
Anne improved dramatically, both physically and cognitively during her 3-week Therasuit therapy. Please pray that she would continue to improve at home.
Please pray that Anne would learn how to control her anger. When she gets angry, she will sometimes hit or pinch the person closest to her… which is usually me. This means I also need prayer for wisdom and patience to coach Anne to deal with her anger.
Lastly, please pray that Anne would come to know and trust in God’s goodness.
I am very impressed with this program. Anne made significant progress in the three weeks. It really is amazing. She is VERY proud of herself.
Here are a few videos…
This is one of her walking with a cane. The therapist is moving the cane for Anne and lightly touching her left side. Anne is supporting all of her weight – the therapist is only giving her cues to help her balance.
This second video is a sample of some of the exercises she performed. Her left foot is attached to a pully with weight on the end. She started this exercise on day one with .5lbs of weight. Her left leg was extremely weak, but it has gotten stronger… she is pulling 4lbs in this video! It’s the last day, so we celebrated by letting her eat potato chips… her favorite food :-)
1. Anne CAN put forth effort. I’ve seen her grit her teeth and wrinkle her forehead as she strains to move her left arm. Seeing that effort has to be one of the most encouraging aspects of these last three weeks.
2. Anne has a fierce temper. Anne is soooo stubborn and gets angry when she feels unstable – which is most of the time. Today, while she was doing squats, she got especially mad and started to yell something ugly (which she knows she is not allowed to say). The therapist asked her to do 10 squats. Each time she would say the “forbidden” phrase, we would have to start back at 1. She got to 5 – and then she yelled it: “I’ll bite your butt!” So we started over. She got to 2 – and yelled again: “I’ll bite your bu-!” She thought if she left off the ending “t,” it wouldn’t count. But we started over. We got to 3 and Anne started to yell, and then thought better and said, “I’m MAD!” Victory. Anne exhibited reason and self control. Amen and Amen.
3. Anne has many obstacles to overcome. The greatest of which is fear. Anne has the physical ability to walk with the least amount of assistance. But she can’t overcome her feelings of fear each time she feels the slightest bit off-balance. If Anne walks independently one day, it will come after years of “persevering -never-giving-up-hard-work.”
Which leads me to the fourth thing I’ve learned…
4. I can’t believe I’m writing this, but… I wouldn’t trade Anne’s broken body for her former healthy self – simply because of the character she will develop in overcoming her disabilities. Special needs children have amazingly strong spirits because of the amazingly large obstacles they have to overcome. Anne has put forth an inspiring effort over the last three weeks!
I confess that I’ve spent way too much time focusing on my “seen” circumstances instead of the “unseen” promises in God’s word. I’ve been overwhelmed thinking of how much work it will be for Anne and our family to continue her recovery. But just as I take pleasure in seeing Anne’s effort and perseverance so does God take pleasure in me – even in my weakest efforts. The key is leaning on Him for strength for the moment – and not worrying about where the strength for tomorrow will come from.
So the fifth thing I’ve learned…
5. Living in my own strength leads to exhaustion and burn-out. God has given me circumstances that force me to lean on Him. Even though I hate it, and get so angry… and stubborn… and I feel like yelling, “I’ll bite your butt!” – I’m thankful that God would care enough for me to give me such an honorable task as to care for a special needs child. And for this, I am grateful :-)
We’ve finished our first week. Anne has done amazingly well.
Specifically, she is less frightened and has more confidence; therefore, she is putting forth EFFORT! She turned to me several times today and asked, “How hard would you say I’m working? Just regular hard, or SUPER hard?” She is taking pride in her work ethic – this is something I haven’t seen before.
Here is a video taken while Anne is walking on the treadmill. There are no tears on day 5. She trusts that she will not fall, and she is having fun experimenting with the bungees. She is moving her right foot on her own. The therapist is just helping Anne with foot placement. Anne needs help with her left leg, but she is moving it much more than she did on Day 1. We are all proud of Anne (even Anne is proud of Anne – which is the best news yet!)